Fear, anxiety, stress, and burnout can all happen to parents of children with sickle cell disease, writes columnist Oluwatosin Adesoye.
As a passionate advocate for sickle cell disease prevention, Oluwatosin Adesoye prioritizes prevention over cure, envisioning a world where no child suffers from the disease.
I envision a world where no child has to suffer the complications and pain of the disease, although realistically, I don’t see that happening yet.
Author's summary: Parents face heavy burden with sickle cell disease.