Lived Experience Matters in Cancer Care and Research
Patients and caregivers in the Patient and Family Engagement program provide valuable insights into the patient experience, helping to improve cancer care and research.
The program has expanded to match patient advocates with researchers, aiming to design more authentic and participant-friendly clinical trials and studies.
- Some patients become advocates after positive experiences, such as early diagnosis and effective treatment.
- Others get involved after negative experiences, like misdiagnosis or inadequate care.
Brandelyn Bergstedt, director of Fred Hutch Cancer Center’s Patient Experience Program, became a patient advocate after a personal experience with misdiagnosis during pregnancy.
Author's summary: Patient engagement enhances cancer care and research through lived experience.
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